The Struggle Is Real

StitchTantrum

It was bound to happen; it was only a matter of time before I had a breakdown.   I had a doozy of a week, and there were a lot of little things that just piled up, and before I knew it I was drowning.  I think the first component was the sleep deprivation because of this burgeoning belly. Getting comfortable is a 10-step process, and right about the time I’m at step 9, I have to use the bathroom.  Once I am finally asleep there is the mandatory 3 am bathroom break.  This particular week there was additional night waking a few of the nights thanks to my kiddos.

My port scar itched, my mastectomy scars itched, my back hurt, and reaching my feet required way more strategy than I think fair.  I went throughout the days trying my best not to rub myself raw, applying various ointments, but it only gave me momentary relief.  My right arm was giving me the blues; my range of motion was fickle. Some days it would be amazing, other days while I was doing my stretches it was as bad as the day after surgery. Oh, and the feeling in said arm is still hypersensitive in some places and non-existent in others, but the areas of hypersensitivity decided to expand.  The same arm my children most often snuggle under and the same arm my husband insists on giving encouraging pats.

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Then, bill after bill after bill. All marked as “self-pay”.  They still hadn’t gotten my insurance information.  Getting a bill for a $10,000 + treatment will ruin anybody’s day, let alone a couple of bills for that amount! There I am on the phone, explaining that I know it’s 5 months since my insurance changed, but I do not actually have the new card, and I can only provide what the insurance representative gave me, scars itching the entire length of the phone call.

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Email notification from Micah’s teacher, apparently, she has decided that she is queen of everything, (we’re talking Queen of Hearts queen) and is wreaking complete and utter havoc on her pre-school.  Not completely uncommon for her, but not for multiple days in a row.  Email from Owen’s teacher, he got a deduction for talking in class for the 3rd time that week and  is having a small meltdown.  Is it a bloody full moon?

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My eyelashes are dwindling, my lung capacity is decreasing, rendering me short of breath after short jaunts.  I’m pretty sure my hip joints are no longer secure in their sockets. In an attempt to take it easy, I binge watched the final season of one of my guilty pleasure science fiction shows. They killed my favorite character, killed him!!! I cried like he was a member of my family, we’re going to blame that on pregnancy hormones.  It’s hot and muggy here, and these scarves on my head are getting sweaty and uncomfortable as are my prosthetic boobs. Not to mention I was almost late to work one morning, because I couldn’t find said boobs.  I think it was apparent I was having a rough go at things and as I was on step 8 of the sleep preparation regimen one night, Dave reached over and started rubbing my arm, my right arm that’s hypersensitive.  One billion fire ants out for revenge marched the length of my arm, and inside I screamed in agony. I squeaked out as nicely as possible that my arm could not handle that and I know he meant well, but if it happened again, I would absolutely karate chop him.

Lord is testing me

I don’t even remember the next day. Everyone came home wearing cranky pants; the dogs were obnoxious. Owen had zero patience, Micah was crabby, I knew that I needed an escape. A good quiet soak was in order stat so I could thwart the pending mutiny on my life’s ship.  At that same moment, my children and husband also realized that they could not possibly function on this planet without my immediate and devoted attention. It all culminated when after being told no to some ridiculously unsafe/unhealthy/unfeasible request, Micah threw the tantrum to end all tantrums. I wanted to join her.  Things weren’t going my way, screaming and crying sounded like a great idea, I totally got her logic. Instead we hugged it out, and talked about how much I loved her.  Enter mom shame, she’s much too old to be acting this way right, what am I doing wrong?  Have I not been there enough for the kids through this? I thought I was doing a pretty good job  talking with the kids and being there for them through all these changes.

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Waterworks, I’m talking the ugly cry.  I texted a friend for her professional opinion regarding Micah’s behavior. Then, I did what had to be done, and called Mommy.  She offered to enroll the kids in a private school where she lived without hesitation, and talked me down from my pity party.  Then my friend that I texted earlier called me, and the first thing she said was, “Where is this coming from?” Light bulb! When she said those words, I imagined God standing beside me with his arms folded, giving me the side eye, and saying under His breath, “not me, that’s for sure.”

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 ourdailyblossom.com

I wish I could say that I immediately prayed over the things that were stirring discomfort in me throughout the week, but I wasn’t always so diligent. The distractions had won that week. I did finally get my soak in the tub and I just poured out my heart to the Lord.  Then I took inventory of all my blessings, a mom that knows just what to say, friends that know when a text won’t do and call at the sign of distress, tea tree oil and vitamin E ointment that make all things better to name a few.

Hard pressed

The next day and following days were much less hectic and terror filled.  I even got my insurance card in the mail!!

In The Meantime

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I had my last dose of chemo for round one, last month.  In my visit with the doctor there was talk about the next steps post-delivery; radiation, scans, medications, and another round of chemo.  “But in the meantime, just enjoy your pregnancy,” she advised.  Which is exactly all I wanted to do before she reminded me that my treatment process is just beginning.

My mom sat with me for my last infusion so David could catch up on work.  I got hugs and well wishes from my nurses when my infusion was over, along with demands for a photo album of baby girl upon my return.  Ah!!! Sweet release, finally a break.  A break from red pee and double flushing, and weekly labs. (The double flushing is a strongly recommended for the first 3 days after chemo.)

As for my side effects. I still have not experienced anything truly unfavorable.  I can’t really tell if my hair is growing back yet, but it has always been slow to grow.  My eyebrows survived thank goodness, and I still have 6 out the 10 total eyelashes I started out with prior to chemo.  I have been dabbling in the art of makeup, and have somewhat mastered eyeliner.  One side effect that is more of a nuisance than life altering is the dark spots. I’ve got dark stripes on my tongue and my nail beds are an unpleasant shade of mud, so I have also become an expert on home manicures.  Worse than my nails, are my feet, particularly the soles.  The bottom of my feet look like cheetah print from all the dark spots.  Lucky for me, no one is really paying attention to the bottom of my feet.

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I had labs drawn a few weeks after chemo and my port flushed.  That was the first time a nurse didn’t access my port on the first try and let me tell you, it hurt like the dickens!! Since I didn’t get a call from my Dr.’s office, I know that my labs look good. I was officially ready to take a vacation from cancer treatment, until the bills showed up.  I literally got 5 in one day! Apparently our insurance provider changed at the beginning of November, and we never (as in still haven’t) received our new insurance cards.  Now keep in mind, I did surgery in November, and began chemo the next month, so I got bills for the entire balance of all those procedures and everything in between.  Talk about a small heart attack!!  I feel like maybe there should be a discount if you’re woman left boobless and hairless, like maybe I should get reimbursed for my pain and suffering.   I got it squared away with the billing department quickly and easily, but I pray to never see those gigantic amounts attached to my name ever again.

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Per my Dr.’s advice I decided to spend this “free” time focusing on home, family, and being pregnant.  Well, it may have turned into a little bit of panic when I started to realize how unprepared we were for baby girl’s arrival.  Fortunately, there is still a sufficient amount of time to plan.  We decided the bambina will reside in our room for the first several months, it was easier than packing up the spare bedroom and rearranging the bedrooms.  Next was the formula.  I’d never really had to give it much thought with the first too since I breastfed them, but seeing as how that’s not an option this time around, I had to figure out what I was going to feed this little thing upon arrival.

I think it is safe to say that cancer will cause you to look more closely at the things going into your body, at least for me it did. I read labels and research ingredients like it’s my job.  Sometimes I choose to ignore them when a craving hits but for the most part there have been several items in my pantry that got the boot.  Well, researching formula is like working on a thesis for your PhD.  You’d be surprised what goes into them and even the “organic” brands, are not so organic.   Needless to say I found a formula I am comfortable with and hopefully it will agree with the baby too.

I am officially 30 weeks now. What? When did that happen? So there’s a good chance if this one follows the trend, I’ve got about 7 weeks until show time.  We are all excited to meet her, and the house is buzzing with preparations and questions from little people about when she’ll be here, and will they be allowed to hold her, and can she be taken to school for show and tell (Micah), and plenty of others.   I have been just stunned by how much God has blessed me and my family during this time.  There have been days that I struggled, but I have always been surrounded by love and support.  I feel good, I’m no more tired than your average pregnant lady in the 3rd trimester, and this baby is healthy and ready for the FIFA cup.  It may not be the parting of the Red Sea, but it sure feels like a miracle to me.

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Blessings and love to you all!!