Chemo Chronicles

My second round of chemo began Monday May 8th, just two weeks after delivery. I was so disinterested in going to that first infusion, and not because of the chemo, but because I didn’t want to leave my little nugget.  The only thing that made it bearable was knowing lil’ bit was in good hands with my friend from work Robin, who graciously volunteered to keep her on chemo days.

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I mean, would you want to leave this cuteness?

The plan for this round is a two-hour infusion every week for 12 weeks.  I tolerated the previous chemo, aka the red devil, exceptionally well, so this chemo should be a breeze according to my physician.   I mean it is still chemo, my cells are still being obliterated, so there are bound to be some consequences.  Per my info sheet from the pharmacist potential side effects are: mouth sores, loss of appetite, diarrhea, nausea, joint pain, fatigue, “chemo brain”, hair loss, neuropathy, decrease in white blood cells (well, duh), and many more.

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Side effects

The first two weeks went by without any noticeable side effects.  As the treatments progressed I began to notice the fatigue, which may be amplified by the demanding infant care schedule. There were days when holding Yuri wore me out, and standing at the stove to make dinner felt like a workout.  My neighbor and I walk a couple of miles a few days out of the week, slowly I began to feel aches where I had old injuries. The shoulder I injured during powder puff football, the ankle I sprained playing volleyball, and the knee I injured playing sand volleyball just last year, all erupted into dull throbbing pain after each walk.

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Just as I was rocking my super short hair do, it started falling out.  It was much too hot and I wasn’t going to sport the type II male pattern baldness for a single second. Once again, I was in my bathroom getting a buzz cut.

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I have’ avoided the mouth sores, diarrhea, nausea, and loss of appetite.  I did develop neuropathy in one toe on my left foot,  who knew that one toe can throw off your balance. The chemo brain is frustrating, but again it may be related to sleep deprivation. On my off days it’s as if my thoughts got on the elevator and decided to stop on every floor before getting to their destination.

Now the side effect I was not prepared for, or maybe I just didn’t read far enough down into the less common side effects, was “menopause like side effects”.  Y’all I am full on hot flashes and night sweats in this Florida summer heat.  There have been plenty of times that I genuinely believed I was going to spontaneously combust.

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At any given moment, fans blowing and AC cranked to freezing.

I only have two more treatments and all in all, I can’t complain.  I’m doing my best to stay active, I always keep a cool drink within arm’s reach, and Thursday is my designated nap day.  I am eagerly looking forward to getting my energy back, being able to properly thermo-regulate, growing some hair, oh and feeling my toe again.

Scanxiety

With this diagnosis, there have been many tests.  First there was the mammogram, a biopsy, MRI, fetal screenings, and most recently, weekly blood draws.  It is common to undergo PET and or CT scans with a cancer diagnosis, but since I was pregnant those tests were not an option.   With each kind of test there is a tiny bit of concern, when I was pregnant it was always hoping that lil’ bit was healthy in there, and with each blood lab, hopes that my white blood cell counts are okay and my iron, because iron infusions are not fun.

When my oncologist originally scheduled my PET scan I didn’t think much about it.  I was more concerned about how claustrophobic I’d feel in the machine.  As the appointment date approached, little gremlins of doubt started to visit.  What if that pain in your toe isn’t really because you clipped it on the couch?  Did you just cough, could it be in your lungs?  Is your vision in your right eye blurry, that surely has nothing to do with you putting glasses on and forgetting that you didn’t take your right contact out?  What if you light up like a Christmas tree?   Naturally, I did my best to combat these thoughts with scripture and lots and lots of prayer.  I felt mostly confident that everything was going to be okay, but my mind told me it was foolish not to “consider” the possibilities.

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The day of my PET scan my mind was preoccupied with the passing of my aunt, the plan was to head out of town for the services as soon as the scan was finished.  The nuclear tech came out to meet me and saw Yuri and Dave in the waiting area.  “Uhm, ma’am let’s have a talk.”  He very graciously told me that he was not comfortable administering the test, and that he couldn’t believe the pre-lab information didn’t say anything about being around children.  Basically, the injection used to highlight any cancer cells on the scan, turns me into a walking Chernobyl for 6 plus hours.

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I thanked him for the heads up and rescheduled for another date so that I could make arrangements to be away from the  house so I wouldn’t contaminate lil’ bit.  To my chagrin, on my second attempt there was a snafu with the insurance, so no scan that day.  I was told not to eat 5 hours prior to the scan, so I got that news while hangry.  I kept it together and rescheduled for a 3rd attempt.

Finally about a week ago, I was past the registration desk, insurance verified, waiting for the nuclear tech to take me back.  The injection takes an hour to course through the body so I was left in a little waiting area with a hospital bed and my Spotify station.  Before long, I was on a really narrow table sliding in and out of the scanner.  When I was done, I thanked the tech and rushed to find my neighbor so we could grab something to eat, at this point I’d gone several hours without eating.  I never even thought to ask when I’d get my results.

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My oncology nurse called today with my results.  I felt a little flutter in my stomach when I saw the number on my caller ID.  I knew instantly when I heard her voice what she was about to say.  The scans were in and they showed no signs of cancer.  Y’all excuse me while I have a praise break.

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